John and Yvonne Robinson are sailing for SUDEP. They plan to voyage around the United Kingdom. The trip is being used to raise funds for SUDEP Action in memory of Johns daughter who died suddenly of SUDEP (a form of epilepsy) at 24.
Please sponsor them by visting their just giving page and making a donation.
Their planned route will cover over 2500 miles as they circumnavigate the UK. You can see more details of John and Yvonne’s sailing for SUDEP route by visiting their blog here. John and Yvonne will be setting sail on the 10th of May 2013, the voyage is expected to take around four months as they make a few stops around the four countries that make up the United Kingdom. You can keep up with events as they blog from their website.
Epilepsy is one of the top-ten causes of early death. Sudden Unexpected Death in Epilepsy or SUDEP can often be traumatic for families and distressing for professionals, all of whom have questions.
SUDEP Action cares for the bereaved and works with families and professionals to make change. Using research and awareness they strive to get the answers that will save lives.